Tuff Muffin: The Grand Opening + ONH Info-Drive


Today is a big day for the Forever & After Family!

It isn’t just my birthday. 🙂

After a lot of hard work and even more help, my own boutique, Tuff Muffin, is now OPEN!

And there are quite a few events going on around the interwebs to celebrate. (Pssst! A giveaway!)


First of all,
Go check out the Tuff Muffin goodies:
*Baby Leggings
*Bandana Bibs
*Headbands

Next, be sure to head over to my blogging mamafriend’s blog Domestic, But Not Martha for one heck of a giveaway to kick off Tuff Muffin. (thank you Crystal, for all of your help, support, and advice <3)

And right here on my blog is a little info on Optic Nerve Hypoplasia and a new page on Chazz’s Story so far.

Last week, I announced I would be opening up shop today (My Birthday!) in honor of Chazz and to raise awareness for Optic Nerve Hypoplasia.

The Tuff Muffin proceeds all go to help with Chazz’s medical expenses. One day they may even help fund a procedure to help him see better.

*Also, 10% of every sale from the Grand Opening (Jan 25th – 29th) will be donated to The Vision Center at The Children’s Hospital in LA. They are one of the leading researchers of ONH and they need our support!*

They provide a ton of information and resources to question-filled parents like us.
{Feel free to share any of the ONH information with your followers, it helps to spread awareness, and also counts as an entry to the giveaway.}

If I can cause even a little Internet ripple of information, it might reach just the mama looking for it.

So, What Is ONH?
Optic Nerve Hypoplasia is when the optic nerve is underdeveloped. Millions of these tiny nerve endings form in the early weeks of pregnancy. Small optic nerves are unable to send a full picture back to the brain, making it hard to see. Some can only see shadows and light or dark, while others don’t even know they have it.

People with ONH can also have an abnormally developed brain and/or Pituitary Gland. In turn this means they don’t produce enough growth hormone (among others like testosterone and even those that control things like your body’s hydration.)

Chazz is in the 2nd %ile for growth. (BTW, he was born an 8lb 5oz stout baby in the 45%ile!)

Yep. Chazz faces a lot every day. And it is just the beginning of a long journey.

But we know nothing is going to stop our Tuff Muffin! Read more about Chazz’s Story and ONH on the new page!

*Please pass on this info so that those looking for answers might see it*

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3 Comments (+add yours?)

  1. Trackback: Tweets that mention Tuff Muffin: The Grand Opening + ONH Info-Drive « Forever&After -- Topsy.com
  2. Torey
    Jan 27, 2011 @ 20:53:16

    Hi Chelcie,
    My 4.5 month old baby was diagnosed with ONH at 3 months old. The cause of his ONH was an in utero stroke during the 1st trimester. So basically one side of his brain is messed up and the stroke caused the ONH. Fortunately, the other half of his brain can take over for motor/cognitive skills. At this point we know he doesn’t see much (maybe light/dark?) but are hoping that his sight will improve by 1 year of age. Thanks for writing so openly about Chazz’s ONH. It gives me hope that our little guy will be okay. We have 2 other kids that don’t have this, so this is a whole new world for me.
    Torey

    Reply

    • Forever&After
      Jan 27, 2011 @ 22:02:47

      Hi Torey,
      I am so glad you came across my post. Your little one sounds like quite the little trooper. I know how hard it is to be thrown into this ONH stuff. You are right, it is a whole new world. And you can google yourself into a frenzy of despair. But just know that it will all be okay mama. And even though we are still navigating the waters ourselves, don’t hesitate to email me. There isn’t a lot of info out there, and I would love to pick your brain!

      If you don’t mind my asking, how did you guys find out? How did they correlate the stroke with ONH? Where are you guys at on this journey?

      And thanks for stopping by and helping to inspire me to keep writing so openly about Chazz’s ONH.

      Reply

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