Eye Appointment & ONH Update

Chazz had a follow-up appointment today with his Ophthalmologist, Dr. Weber. About a month and a half ago, he got his first pair of glasses and it was time to assess!

Now understand that Optic Nerve Hypoplasia is an underdeveloped optic nerve (what sends the vision to the brain for “decoding”.) So glasses won’t improve his existing vision to 20/20 like with a “normal” eye, but there are two BIG reasons why he does need them.

1) Protection. Chazz is currently diagnosed as legally blind in his left eye and 20/200 in his right eye. (although we are convinced it is better than that!) The glasses serve as a protective barrier against any pokey object that could compromise what vision he has.

2) Correction. Since birth, Chazz’s left eye has had a tendency to wander when he is tired, and his right eye has become a little far-sighted from being much stronger than his left. Also, due to the two different images his brain is receiving from his eyes, it becomes trained to ignore one image, for Chazz his right eye (the one with better vision…). The glasses will strengthen the vision in his right eye, correct his far-sightedness, and help strengthen the muscles in both eyes to prevent any further wandering until his left eye can be surgically centered.

Now try explaining that to a two-year-old to convince him why they need to stay on!!! (hint: doesn’t work!) The first week was a little bit of a battle, and some mornings he just doesn’t want to put them on. But over all, Chazz has done so well keeping them on. Basically, unless he is sleeping or in the bath, the glasses are on. and once Dr. Weber explained how the brain starts to ignore the differing images and that it isn’t easy to get it to restart that signal, we have been pretty dang adamant about it.

Introducing the glasses was a bit of a struggle, but we made it clear that they help him see better and are to be worn always. I would say a proper fit is key if your little one gets glasses. Any sort of discomfort just adds to the madness! We brought Chazz back in twice to be re-fitted, and they said we were lucky. Also, a really cool glasses case is very important. I think because his case has cars on it, he was more willing to even try them on. Roman and I even popped the lenses out of old 3D movie glasses and rocked them along side him the first few days. We just wanted to make it a fun and easy transition.

After he had them on for a bit, we had the coolest experience ever! Suddenly, everything up close that used to be a blur for him, was visible! I took him on a close-up “re-tour” of our home. The heart on his high chair table, the pictures hung on the wall, word magnets on the fridge, ALL THINGS HE WAS MISSING OUT ON! It was one of those mixed emotion moments for me, he was seeing so much clearer, yet I couldn’t help but think of all the things he had been missing.

So fast forward to the appointment. Chazz walked right in there like he owned the place, repeating the words “eye doctor” which was adorable and hilarious at the same time. He knew what was up! His usual nurse checked him in and we sang our ABC’s and Twinkle Twinkle until Dr. Weber was ready. The appointment was pretty quick, he checked the fit of his glasses, checked his peripheral vision and pupil response, and asked how we thought it was going. We both agreed that the wandering seems to be less often and severe and that was about it.

So his next check-up is in 6 months, and hopefully by that time Chazz will be able to tell US what he is seeing. And even try a picture eye chart for the first time. How exciting!

(PS- sorry for the shotty pictures, the lighting there combined with my dying phone didn’t do us much justice!)


Making New Friends

As a kid, making new friends was as easy a sugar cookies, baby! And for Chazz, it is no different.

We recently switched Chazz to daycare. Yes, an actual daycare. With multiple living, breathing, coughing, booger-infested children 😛

And guess what?? HE LOVES IT!

I, being the slightly neurotic mother I am, was a little bit crazed when Emily announced she was pregnant (read: exhauated) and no longer wanting to watch kids. Emily started watching Chazz when he was 9 months old, and we love her dearly! But as they say, such is life. Which is what I told her after squeeling in delight, then tearing up at the latter part of the news. (Sigh)

Emily has been with us since the beginning. I was so blessed to be able to take a 9 Month maternity leave, and just as blessed to have her to take care of our son while I work.

Changing caregivers was enough to send me into a 2 week flurry, finding, researching, and interrogating interviewing possible replacements. (By the way, here is a link to an extensive checklist for weeding through options!)

Luckily, we found one we were pleased with. And it is actually close to work and home. Yay! I love how attentive the gals are, they have Bible hour, and they always seem to be cooking something yummy when we get there. They run through the sprinklers on hot days, and have an age appropriate playground for the kids. They even let me bring his own organic schmanic sunscreen and bug spray.


Aaaand you have to enter a security code to even get in the door. Now the neurotic part of me LIKES that!

Most importantly, Chazzman has even made a few friends, Connor and Bridger, and talks about them all the time. Friends make it so much easier to get Chazz up for “baby school” hehe, all I have to do is drop a name or two, and he is almost willing to get up and get moving. (Chazz is like a teenager in the mornings, I swear! He would sleep til noon if he could!)

So, so far so good. And while we sure miss Emily (Chazz still asks to go to Emy’s house 😦 ) we were quite lucky to find a somewhat comparable replacement.

Chazz is adjusting well, is learning a ton, and making new friends.

And panic attacks aside, Roman and I even survived!

Hair Cut Time

Look who’s lookin’ good!


Guess Who’s Mobile!!

WordPress on my phone!! So here are some pics of our not so little man, since its been forever!!!






Well there you go! Our little cheezeball. I love the one with his

new glasses, so silly!